NovoSeven® to the rescue.
NovoSeven is a special treatment for people who have hemophilia and face difficulties with traditional treatments because of “inhibitors” to treatment. Simply put, NovoSeven is able to help control the bleeding when the body’s own clotting factors are reduced, absent or not working properly.
Originally for people with hemophilia A or B with inhibitors, those who have acquired hemophilia, Factor VII deficiency and Glanzmann’s Thrombasthenia can also benefit from NovoSeven treatment. NovoSeven has also proven helpful with controlling bleeding during surgery and intracerebral hemorrhage (ICH).
Designed to provide education for patients and caregivers, this award-winning, comprehensive website was my foray into medical research and writing.
Voices Uninhibited was a patient and caregiver newsletter intended to provide useful support and resources for living with hemophilia and inhibitors. It launched along with the Patient Inhibitor Education Summit. *if interested, please contact me for a more readable copy of this newsletter.
Only 1500 people in the US have hemophilia with inhibitors, making them very isolated. In 2005, Novo Nordisk, makers of NovoSeven, brought them together for the first time ever at the Patient Inhibitor Education Summit. *Please note that the original name for the newsletter was "Fusion," as seen here.
With an agenda developed by community leaders, advocates and doctors, topics were relevant and timely. When you factor in the support of others who deal with the same everyday concerns, you're looking at a chance to create a whole new way of approaching life with inhibitors.
Just because you weren't born with hemophilia doesn't mean you can't get it. And that's not where the bad fortune ends. More often than not, "acquired hemophilia" is misdiagnosed, so treatment doesn't work. That's what makes this condition particularly deadly — with a mortality rate around 22%.
Acquired hemophilia indication mailer
This piece was sent to hematologists and emergency room doctors with diagnosis information.
"Time is brain" is a saying about stroke, meaning the longer the bleed lasts, the worse the outcome. Because NovoSeven is designed to resolve bleeds, it was often used off-label for Intracerebral Hemorrhage (ICH), which is the deadliest form of stroke. This advertorial, researched and written by yours truly, was intended to condition the market for the pending indication. As such, we made no mention of NovoSeven, instead emphasizeing the need for a solution.